Friday, August 6, 2010

Sugar baby

I am sitting here at primary childrens hospital typing on the iPod so this will be a short quick update because it is hard to type on this little thing. We are still going to philadelphia but we won't leave until monday morning. The children's hospital of Philadelphia (chop) is sending their plane. Danny is going to ride with Liam and I am taking a commercial flight. We are excited to get there and see what is going on. They have a test they do on the pancreas which will show the cells and if they are spread throughout or centralized. He will have to have surgery to take out part (if centralized) or the majority (if spread). This test will determine his outcome. 95% of centralized cells that are removed result in a cure which is what we are praying for because it is the best case scenario. If the cells are spread throughout they have to remove the majority of his pancreas which would most likely cause type 1 diabetes later on down the road. So we are anxious to get there and have the scan done. This hospital and one dr there is the only place in the nation that does this operation. This dr is on vacation until aug 16 and he will not let any other dr operate on a baby. That is good to know that he will be in the best hands. We don't know when the surgery will be. We have been told that the post op is 4-7 days. In the meantime he is still enjoying all the sugar water being pumped in. He is doing so good. His sugar levels are great. We are getting taken care of. This is a great place. We have loved our dr. We ran into elder rasband of the seventy the other night. He has a grandson in here. He was very interested in Liam and wanted to know how to spell his name so they could pray for him and we could pray for their grandson. It was a very spiritual conversation. We have been and continue to be blessed. We have had so many people do so many things for us. We are truly truly blessed and we thank all our family and friends for all they have done and will do in the next few weeks. Our heavenly father is so aware of us and our family at this time. We love him dearly. I will try to update more regularly. Liam is a little sweetheart and we are so blessed to have him. And I guess it isn't as short as I thought it would be. This thing is easier to type on than I thought.





7 comments:

Thayne and Krystal Family said...

We're so glad things are going as well as they are (given the situation). We've been keeping your family in our prayers ever since we found out about Liam's blood sugar problem. We hope for the best with his surgery. Please let us know if there is anything we can do for you (even if it's referring you to the best Philly steak and cheese vendor there in Philly)! Thinking of you! Lots of love!

RoyZGirlz said...

Hey guys, our thoughts and prayers are with you. He's a cutie! Let me know if I can do anything, ie; buy school supplies, or watch your girls. Love you tons!

Megan said...

Oh Rachel he is adorable! I'm so glad for the update. You've been in my thoughts. Little Liam will be in our prayers and I hope everything goes well with his surgery. Please continue to keep us all informed. You have MANY friends who are checking your blog daily for updates! (When our baby was in the NICU, all of my posts were done on my iPhone! It was the only way to keep everyone informed at the same time!)

Jill said...

Such cute pictures of such a sweet and special boy.

We really can't wait to have the girls here next week. I wish we could join you in Philly, but I know that everything will go great.

Love you. You know how much....

;)

Michelle said...

He is so cute and chubby! Your attitude is great and I know things will work out. Even though trials are hard, it's bittersweet because we are closest to our Heavenly Father during those times. Thanks for reminding me of that.

The Reillys said...

Good luck with everything. We are thinking and praying for you all.

Pat and Logan

Anonymous said...

Thanks for keeping us updated. He's such a cutie. I will continue to keep Liam and your family in my prayers! It sounds like he is good hands.