Wires, wires, wires

We are here at Children's Hospital of Philadelphia sitting in the room. Yesterday was a big day for Liam. He had to get a new picc line put in. His picc line from primary's was not central which means it wasn't all the way in where it was supposed to be. They put a picc line in that has two ports. One port through one vein and one through another. One has the sugar water flowing through it and the other has his medication. They don't like to put two fluids through one port. They kept his other line in just in case they needed it for an iv. They had placed iv's in each feet as well. So he had some sort of wire coming out of each extremity. They took one iv out of one foot and will probably take the original picc out tomorrow after his big scan. They have put these things around his new picc line and the iv in his foot called no no's. The first night we were here an Asian lady came in to place a new iv in his foot. After she finished she told us to put on a no no. We really couldn't understand her and we asked her what she was saying and in her cute little Asian voice she said "no no like no no touch". It was cute. We still didn't understand what she was talking about. So he has these braces on one arm and one leg. They also have these cute little soft gowns for the babies to wear. The hospital had to make sure they were treating him for hyperinsulinism so they had to take him off his fluids and medication so his sugars would drop and they could get some blood to be certain it was low. They then gave him a shot of the medication to make sure his sugar came up. It came up quick. To do the picc line and find out it was hyperinsulinism he had to be fasting. He ate at 5 am and one ounce at 11 am then not again until 6pm. He was excited to eat. I am pretty sure he knows his mama. He is such a sweet little boy. Tomorrow is the big test. He will be put out completely. The scan will be about 2 hours from start to finish. We hope to get results tomorrow night. If not they won't be read until mon. They said they are usually back by that night. We are anxious to find out. He has had a quiet day today just eating and sleeping. I will update about his scan as soon as I hear any results. I am glad he is a baby and doesn't know any different with all that is being done to him. We consider it a true blessing to be here. We know that Heavenly Father has truly been aware of us. The nurses and staff know exactly what they are dealing with. They have worked with babies like this on a weekly basis. We have faith that all will be well with him.

Hello, everyone, this is Kara, Danny's sister, again. I will be the one posting the pictures they send me via their phones. I also wanted to include a personal note from my parents and our family. We are all so grateful for the faith and prayers offered on behalf of Liam, Danny & Rachel. We know there are many of you out there that have knelt down to ask Heavenly Father for blessings to be bestowed on this beautiful little family. Thank you from the bottom of our hearts, and may God bless you, too.

I feel prompted to share a beautiful message about hope and love. Many of you may have already seen it, but we can all be reminded that although there are obstacles in this life, Heavenly Father is still mindful of each of us specifically, and He will love us through them.